Yes, its encouraging that severe cases and deaths are lower during this surge.
Believe them
Long COVID survivors have said over and over again that they long to be believed.
They downplay what I am going through, which is so painful.
It makes me feel so unseen.
She says, We are fighting to be believed, let alone get help.
People accused her of being a paid actor when Nichols started speaking out publicly about long COVID.
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She got death threats and was called an attention whore.
What were experiencing is not psychosomatic, she says.
Nichols says having friends and family believing her has been life-saving.
Nichols said her husband took over household tasks like cooking and cleaning when she was sick.
St-Esprit says that friends provided meals, gift cards, and childcare during doctors appointments.
All that general helpful stuff goes a long way, she says.
Care packages or get-well cards are never a bad idea.
The pandemic is ongoing.
Its Amazing How Its All Connected.
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If exposed or infected, follow current guidelines on isolation and re-entry.
Nichols says of her loved ones, They have changed the way they love me and communicate with me.
These changes are going to look different for different people.
Nichols says not to take the needs of a person suffering a chronic illness personally.
But you’ve got the option to be an advocate for people with long COVID.
If it helps them, go with your friend or family member to doctor appointments and take notes.
Join an advocacy group like Body Politic ordonateto support long COVID resources and research.
Shifting the attention from the ongoing needs of our loved ones to our own can feel guilt-provoking.
Still, self-care is not selfish!
saysS Anandavalli, PhD, an assistant professor in the Clinical Mental Health Counseling program at Southern Oregon University.
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