This is her story.
At that time, doctors believed I just had issues withovarian cystsand offered no relief.
Finally, a nurse pulled me aside and said she believed I might have endometriosis.
As I read the brochure shed handed me, I felt like Id been punched in the gut.
I realized there was no cure, and that I was going to be in pain forever.
When COVID-19 hit, I couldnt go to the hospital anymore when I had a bad pain flare.
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Eventually, I was also able to find a great endometriosis specialist who practices both functional and traditional medicine.
In the meantime, we tried everything, including various hormones and other drugs.
Those treatments kept things at bay for a while.
Its Amazing How Its All Connected.
I closed my fitness business, and spent the summer in bed.
Occasionally, the pain would clear up, giving me a false sense of hope.
During one of these pain-free periods, my husband and I decided to take a trip to Italy.
I decided it was finally time to do the surgery.
I underwent an emergency procedure.
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Still, the surgeon assured me my prognosis was optimistic.
Within a month it had all grown back.
At that point, I was not in good shape mentally, physically, or emotionally.
Imagine having the worst pain of your life and just never being able to get rid of it.
Imagine having the worst pain of your life and just never being able to get rid of it.
I was in too much pain to want to live.
I still feel like this sometimes.
My husband was afraid to go to work because he didnt want to leave me alone.
Our relationship has never been the same, and its the hardest breakup Ive endured.
I want people to believe women and their chronic pain.
Im currently on my fourth throw in ofprogesteroneone form of treatment for endometriosisin the last nine months.
This one seems to be helping so far.
This medication could help with intense menstrual cramps or even when you havecramps but no period.
And it feels like were doing just that.
Weve done spinal injections.
Thats kind of where were at.
Were combining Eastern and Western medicinejust throwing everything we can at this to get some quality of life back.
Awareness matters, but representation matters more.
People with chronic health issues are up to nine times more likely to die by suicide.
That lag is part of the reason I have permanent damage to my organs.
And this has been my experience navigating this issueas a white woman.
My whole business is geared towards changing this.
I dont want more people to have to go through two decades of doctors shrugging their pain off.
We are here, we are suffering, and we are done doing so in silence.
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